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Rare Disorders: Research, Surveillance, Health Promotion, and Education Grants
Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and OutcomesFOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation...more
Posted On - 2014-12-19
Research Approaches to Improve the Care and Outcomes ofPurpose The overall purpose of this FOA is to identify and facilitate the provision of effective clinical care and needed educational/informational resources for people living with SB. This FOA is...more
Posted On - 2014-02-25
Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders• Purpose. Using methods based on those from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet), this funding opportunity announcement (FOA) will support: 1....more
Posted On - 2014-02-26
Using Longitudinal Data to Characterize The Natural History of Fragile X Syndrome to Improve ServiceThe purpose of this FOA is to contribute to the understanding of the natural history of fragile X syndrome (FXS) across the lifespan, explore effective strategies to increase participation in the...more
Posted On - 2020-01-22
The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD,...more
Posted On - 2018-12-07
Research Approaches to Improve the Care and Outcomes of People Living with Spina BifidaThe purpose of this funding opportunity is to identify health care and clinic practices that are associated with the best outcomes for people living with spina bifida (SB) and to communicate and...more
Posted On - 2018-12-07
Social Entrepreneurship
Spotlight
This Social Innovation Helps Prevent Bed Sores in Wheelchair Users
Co-founders William Mann and David Mravyan devised the Sensimat during a mandatory project for their MBA at the Richard Ivey School of Business in Canada. Sensimat is a device that helps manage and assess pressure among wheelchair users.
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