Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance

Eligible applicants should have the infrastructure and capacity to identify, collect, and disseminate information on outcomes associated with persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults.

Specifically, this entails:
1) access

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to a population of children, adolescents, and young adults with PTD/TS; 2) expertise in identification of PTD/TS; and 3) capacity to collect and analyze survey data and summarize and disseminate findings.CDC proposes to allocate funds to implement a Notice of Funding Opportunity (NOFO), Surveillance of Public Health Burden of Persistent Tic Disorders including Tourette Syndrome in Children, Adolescents, and Young Adults.

The purpose of the NOFO is to conduct surveillance of persistent tic disorders (PTD) including Tourette syndrome (TS) among children, adolescents, and young adults to:
• Document the public health burden (i.e., outcomes) of these disorders • Generate data that can be used to inform education and outreach activities to improve the health and well-being of individuals with tic disorders and their families.

Proposed activities for this NOFO include the following:
• Collaborate with CDC and other NOFO recipients to identify measures for priority areas of burden including cost, healthcare transition, suicidality, and co-occurring disorders.

• Collaborate with CDC and other recipients to determine a standard survey and surveillance protocol across sites and shared data approach.

• Collect and share de-identified data with CDC.

• Collaborate with CDC and other NOFO recipients to analyze, summarize, and disseminate multi-site findings.
Related Programs

Birth Defects and Developmental Disabilities - Prevention and Surveillance

Department of Health and Human Services

Agency: Department of Health and Human Services

Office: Centers for Disease Control - NCBDDD

Estimated Funding: $3,750,000

Who's Eligible

Obtain Full Opportunity Text:
Combating Overdose through Community-Level Intervention

Additional Information of Eligibility:
The applicant must provide evidence of access to clinic-based samples of children, adolescents, and young adults (ages 6-24 years) with a current persistent tic disorder including Tourette Syndrome (PTD/TS) and the ability to collect data on this population.The applicant must include in the application a table of contents, project abstract, project narrative, (including work plan) budget narrative, letters of support, CVs/resumes, organizational charts, a copy of their indirect cost rate agreement, and a data management plan demonstrating secure handling and storage of data.

Assurances should be provided that data will be kept on restricted and/or password-protected systems that only individuals working on the respective surveillance system can access.

Failure to include these documents will cause the application to be deemed nonresponsive and not be passed on for further review.The award ceiling for this NOFO is $750,000.

CDC will consider any application requesting an award higher than this amount as nonresponsive, and it will receive no further review.

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