Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions Program

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The Centers for Disease Control and Prevention, more often referred to as CDC, is a federal government agency operating under the United States Department of Health and Human Services that is largely responsible for protecting public health and safety through information dissemination.

The grants and programs of the CDC are geared towards the achievement of its general agency mission which is to "collaborate to create the expertise, information, and tools that people and communities need to protect their health – through health promotion, prevention of disease, injury and disability, and preparedness for new health threats."

In keeping with this mission, the Centers for Disease Control and Prevention has recently established the Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions Program wherein it seeks to create and evaluate a surveillance system for congenital and inherited disease conditions.

Certain disease conditions such as Spina Bifida, Muscular Dystrophy, and Fragile X Syndrome are the types of diseases with a very limited information and source of knowledge. Doctors and scientists find that there is no system or integrated approach that is specially designated to identify and describe the people that are suffering from these conditions.

For this reason, the Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions Program aims to design and develop a prototype surveillance system that can serve as a model for the aforementioned conditions.   (continued...)

Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions Program
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