Since the 1990s the congressional budget has included funds for the the Centers for Disease Control and Prevention (CDC) to reduce or prevent the complications of hemophilia and other congenital bleeding disorders.
Since 1996 the CDC has funded the federal network of hemophilia treatment centers
(HTCs) for the collection of data for the monitoring of health indicators of importance to persons with bleeding disorders.
This data is used to measure rates of complications of bleeding disorders and monitor trends over time (including inhibitors and other issues of blood and treatment product safety); identify high risk populations for prevention programs; and identify issues that require research.
The purpose of this FOA is to continue the surveillance for these conditions through the HTCs.